There is lots of help & support for families of premature babies available so please don’t ever feel that you are alone. Going into premature labour and giving birth can happen unexpectedly and extremely fast. It can take a long time before you remember/come to terms with everything that happened. Below you will find the biggest charities that offer help and support for families of premature babies and anyone who has experienced pregnancy or baby loss.

Bliss for babies born premature or sick.

Founded in 1979 by a group of parents who realised that hospitals did not have the equipment and staff did not have the training to effectively care for sick or premature babies. 40 years later Bliss is the leading UK charity for babies born needing neonatal care every year.

Their website has lots of useful information, a freephone number for general enquiry’s or questions and email support.

Tommy's. Together, for every baby.

Tommy’s was founded in 1992 by two obstetricians and one of their patients started a campaign to raise money for pregnancy research. This was the start of what is now Tommy’s.

The website has information on all aspects of pregnancy in the Tommy’s pregnancy hub. They have a baby loss support and information section as well.

Tommy’s offers a pregnancy line where you can talk to a midwife by email or phone about your pregnancy or pregnancy loss.

Neonatal Expenses Fund Scotland.

The neonatal expenses fund was set up in 2018 to help parents with the extra costs of having a premature baby. It can cost on average an extra £200.00 per week. You can check eligibility on the website as well as download the application form. 


Sands is the leading stillbirth and neonatal death charity in the UK. Founded by two bereaved parents after finding there was no support available. Sands has grown into a national charity who’s mission is to reduce the number of babies that die. Improve care and support for anyone affected by the death of a baby.

Sands offer support in many ways, phone, email, books and support groups.

There are many more local charities (too many to list) and support available. Speak to your midwives, doctors and nurses or contact Bliss for any assistance in finding local support. 

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